New York City Worldwide Lyme Disease Awareness Campaign: Kenneth Liegner, MD

Dr Liegner's Speech at the NYC Worldwide Lyme Rally

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Letter to Congressman Gibson

Major Initiative Needed to Fight Tick-Borne Infections
http://nyclymerally.blogspot.com/2013/05/major-initiative-needed-to-fight-tick.html

Lyme Disease: Does it Really Linger?
http://nyclymerally.blogspot.com/2013/05/lyme-disease-does-it-really-linger.html

Lyme Disease

The Sensible Pursuit of Answers

Kenneth B. Liegner

Lyme Borreliosis and Related Disorders, Internal and Critical Care Medicine

8 Barnard Road, Armonk, New York 10504

Journal of Clinical Microbiology, Aug. 1993, p. 1961-1963

http://www.lymeinfo.net/sensiblepursuit.html

VIII International Conference on Lyme Borreliosis and other Emerging Tick-borne Disease, Munich, Germany, June 1999
http://nyclymerally.blogspot.com/2013/05/viii-international-conference-on-lyme.html

Letter from Dr. Liegner to Intracorp Third-Party Review Physician who ulimately denied reimbursement for intravenous therapy for a 7 year old with apparent Lyme encephalitis, which eventuated in death within 30 days of cessation of IV antibiotic therapy

http://nyclymerally.blogspot.com/2013/05/letters-between-dr-jones-and-dr-liegner.html

Letter from Frederick County Maryland Department of Public Health to Dr. Liegner RE: Reporting Jennifer Lilly case

http://nyclymerally.blogspot.com/2013/05/public-health-letter-to-dr-liegner.html

Dr Liegner's Letter to the Institute of Medicine

http://nyclymerally.blogspot.com/2013/05/dr-liegners-letter-to-institute-of.html

Logan Research Assays in Raymond Dattwyler's Research Lab

Video of Vicki Logan 2001-06-21

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Dr Liegner Letter to JamesGoldman

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Dr Liegner Letter to JamesGoldman #2

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Dr Liegner Letter to James Goldman #3

Worldwide Mission Statement

Worldwide Patients are raising awareness and protesting to highlight the need for:

1. Recognition that Lyme disease/borreliosis, and other tick-borne infections, such as Babesia, Bartonella, Rickettsia, Ehrlichia, are serious, and sometimes fatal illnesses.

2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.

3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.

4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.

*Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”

* Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.

5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatment methods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)

6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit.

Pages

Kenneth Liegner, MD

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